[The Cure How a Father Raised 100 Million—and Bucked the Medical Establishment—in a uest to Save His Children] EBOOK/EPUB

Me a deeper understandingI do uarrel a tad with the title There is no cure for Pompe as yet But the bimonthly tad with the title There is no cure for Pompe as yet But the bimonthly long infusion treatments do appear to at least etard or halt the effects of PompeA good movie was adapted from this book a few years ago Extreme Measures with Harrison Ford and Brendan Fraser I tried to Beer Law: What Brewers Need to Know read this book Ieally did And I mean I tried eally hard The story is incredible I "cheated and did a combination of watching the movie based off the "and did a combination of watching the movie based off the and wikipedia search on the subject But Geeta Anand has to be one of the driest authors I ve "Read In Recent History I Gave Up "in ecent history I gave up before halfway through after thumbing through the photos of course and gave the book to my Mom Even she had a hard time getting through it though she is much of a trooper than I and actually finished it It s now in the mail to someone 3000 miles away thanks to Paperbackswap Five stars for the writing and 5 stars for John and Aileen Crowley who faced one of life s biggest challenges with great courage and brilliance They have two children with Pompe a The Confederate Privateers rare disease that is fatal within months of diagnosis John gives up his job and throws himself into finding the scientists who are closest to finding a cure A lot of this books explains in detail the business of science and the chemistry of producing a new drug It is also almost painfully honest about the struggles and stresses families face with very sick children Wow All I can say is Wow The energy and dedication of this family is amazing If you thought the movie Extraordinary Measures was something amazingead the book it was based on It s detailed and eventful than the movie even came close to being And if you have never heard of Pompe diseaseyou will learn a lot about it in this book And what it takes to get a drug to work to be good enough to try on animals let alone peoplewhat an incredible journey the Crowley family has been on and still is A truly uplifting and mind boggling Big Bad Detective Agency read Oh the things we take for granted every day. T once aiveting story of the birth of an enterprise ala Tracy Kidder’s The Soul of a New Machine and a inspiring tale of the indomitable human spirit in the vein of Erin Brockovich and A Civil Action The Cure is a testament to ingenuity unflagging will and unconuerable lov.

Geeta Anand î 1 READ & DOWNLOAD

Was working hard to find cure Now imagine that a means was placed in your hands to aid in finding that cure Wouldn t you do everything in your power and to make sure that a cure was found and that your children were given the chance to partake of it As a parent I found that book very important to ead It was a little technical than I would usually like but appropriately so Definitely worth my time and anyone else s to Otto Freundlich: Cosmic Communism read Aftereading it I borrowed the movie from our library to watch Extraordinary Measures with Harrison Ford and decided I liked the book betterI finished this a while ago but forgot to move it to my ead shelf I have to admit to an extreme bias when commenting on this book My brother and I are two of the 200 adults in the US who have the adult onset form of this disease Pompe disease is a heredity genetic neuro muscular disease in which the body doesn t produce enough of an enzyme to epair muscles or promote muscle growth This book is about the search for a cure or treatment for the juvenile form of the disease Newborns with it barely live than a few yearsJohn Crowley s attempts to Profiles in Leadership: Historians on the Elusive Quality of Greatness raise many millions to effect a treatment for the disease and Geeta Anand s writing about it tell aemarkable story Crowley s two children were diagnosed with Pompe early in life and this details his struggles with the science community and investors to arrive at a solution Anand gives a vivid portrait of the agony joy and troubles that accompanied his uest His two children now in their late teens are still alive and have the prospect of a longer life due to the infusion treatment that was developedI personally have benefited from his work About four was developedI personally have benefited from his work About four ago the FDA approved a form of the enzyme eplacement therapy for those of us with the adult onset type I especially like Anand s writing because she concentrates on the human aspects of Crowley s uest as well as the financial and scientific angles I have no scientific bent whatsoever but Anand s story telling ability gave. On Ford Brendan Fraser and Keri Russell The Cure by Pulitzer Prize winning journalist Geeta Anand is the emarkable true story of one father’s determination to find a cure for his terminally sick children even if it meant he had to build a business from scratch to do so ,
The Cure How a Father Raised 100 Million—and Bucked the Medical Establishment—in a uest to Save His ChildrenIt was interesting to see the elationship between business and science in elationship "to developing new treatments for diseases Money eally drives esearch It seemed that "developing new treatments for diseases Money Der Bilderwächter really drivesesearch It seemed that Crowley was dishonest in his business dealings On one hand I think his passion to find a cure for his disease drove the esearch and on the other hand I think he was incredibly self centered and freuently acted in his own best interest without egard to the conseuences to his family I ead this while flying across the country on an Airplane Last Week And last week and "Had To Stop Reading It Because I "to stop eading it because I crying It would be so devastating to be told that your child only would live to their 5th birthday at the latest because there was no treatment for their disease I think science is fascinating Interested in this because I ve seen the movie a few timesFor non fiction I enjoyed it I was sad when their marriage struggled Incredible true story Very well written What I loved the most about it was how Anand shared a well Schätze Aus Dem Musée Picasso, Paris rounded story She didn t focus on only John and Aileen s heroism as parents to their suffering children but she also sharedeal stories of their weak moments their Letters to Rollins rocky marriage meltdowns in public wishing it would all go away etc Anand did a great job of showing the human side of everyone involved in this story Every time John hesitated to share something about his family and the struggles they faced each day and then chose to share it an arch enemy had a change of heart The people that found him arrogant and too confidentealized they would do the same thing in the same situation The writing wasn t stellar but the story was wonderful Very inspiring Excellent book with detailed Britain, Europe And The Third World research and a very moving true story This was an interestingead I cannot even imagine what this family had to deal with and the author did such a good job portraying both parents and the children and all that was going on around them Imagine if two of your three children had a life threatening disease and no one. “AmazingExplores human courage under the most trying circumstances” New York Post “An inspirational story about business medical science and one father’s efusal to give up hope” Boston Globe The book that inspired the movie Extraordinary Measures starring Harris. .

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